We have much to celebrate!
"Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, to him be glory...throughout all generations, for ever and ever! Amen." ~Ephesians 3:20
one thing I’ve come to realize about Jenna’s skin condition...it is totally unpredictable.
Ichthyosis has stumped me.
For some reason, beyond my understanding, our little Jenna’s skin has not been looking good lately.
It has been extra dry and extra scaly.
And these scales are very visible…very.
Hence the stares.
They seem to never stop.
Most of the time, Jenna’s scaly skin doesn’t cause her any pain.
But stares from other people are bound to cause her pain.
As Jenna’s mom, my first reaction has often been to try to protect her from these stares. Although she doesn’t even know people are staring, there will come a day soon that Jenna will realize people stare at her…and I won’t always be there to protect her.
But today while we were at Six Flags having a blast together as a family, my perspective on this began to change.
While Jenna and I were in line for her favorite “Canyon Blaster” roller coaster, it was obvious that some people were staring at her. It was in that moment that I sensed a change in my heart about having to protect her from these stares.
People will stare, and I shouldn’t shield her from this.
Rather, I will love her through it and teach her to stand strong.
I have no explanation for why Jenna’s skin looks better one day and worse the next.
And I don’t owe any person that stares an explanation for her scales.
And I certainly have no good, reasonable, healthy, or sane explanation as to why our society is so darn obsessed with outward appearances.
So bring on the stares.
No longer do I feel the need to shield Jenna from these stares because her skin…her beautiful skin, scales and all…is simply part of who she is. And only a small part.
If there is one thing Jenna can help teach others it is that we are all so much more than our outward appearance.
So stand strong, sweet girl…you are beautiful—inside and out—in so many ways!